Family and Survivor Stories

Isaac’s Story

Isaac’s Story

Isaac’s mother, Elise, recounts her son’s struggle with and triumphs over pediatric stroke.  Thank you for sharing, Elise! ********** Isaac seemed perfectly healthy when he was born. The doctor commented on his asymetrical appearing cry, but told us not to worry. Two days later his little leg was rhythmically moving, then next day it was [...]

What’s Next?

What’s Next?

As I finished mowing my lawn this evening, I sighed heavily, looked around, and said, “what’s next?” See, my next door neighbor and I have an ongoing feud with our lawns.  This is not your typical neighbor dispute.  In fact, he may not even know it exists.  But boy oh boy, am I invested in [...]

Protect Your Baby From Stroke During Pregnancy

Protect Your Baby From Stroke During Pregnancy

When we learned just days after his birth that our son had suffered a stroke in utero, we were devastated. Like any mother would, I racked my brain for things I might have done to cause it. Did I let an illness go untreated? Overly exert myself? Eat something dangerous? Doctors assured us that sometimes, [...]

Hospital Won’t Give Girl a Kidney Transplant Because She’s Mentally Disabled

Hospital Won’t Give Girl a Kidney Transplant Because She’s Mentally Disabled

Hopefully, the title of this post is what brought you here.  Your disbelief that something like this could be true.  Your need to discover the real story behind a statement  like that. Unfortunately, it is true.  Beyond unbelievable.  And there’s not much else to the story – no operation because she is “Mentally Retarded,” her [...]

Pediatric Stroke May Talk a Good Game, but It’s Got Nothing on My Son

Pediatric Stroke May Talk a Good Game, but It’s Got Nothing on My Son

Those first cries. That first glance. The first touch of baby’s skin on his parents’. These are the moments that define parenthood, that bring generations together, that breed hopes and dreams and happily-ever-afters. For parents of pediatric stroke victims, these are the moments of which parents are robbed. Our younger son, Evan, was born on [...]

Kids Have Strokes, Too – Spread the Word!

While perusing Facebook this evening, I came across this awareness video through one of my fellow stroke mom connections.  It was created by a  mother of a pediatric stroke survivor, and her son is featured in the video. It is so important to raise awareness about pediatric stroke, to get the word out that stroke [...]

Our Story

Our Story

In September 2010, our second son was born after a troublesome pregnancy and c-section delivery. The medical staff had a rather difficult time getting Evan to respond at birth, noting that the lower half of his body was blue, which to the pediatrician on call, appeared strange. Finally, we heard those first cries, and a [...]