Hopefully, the title of this post is what brought you here. Your disbelief that something like this could be true. Your need to discover the real story behind a statement like that.
Unfortunately, it is true. Beyond unbelievable. And there’s not much else to the story – no operation because she is “Mentally Retarded,” her quality of life deemed less than that of anyone else, her worth – her right to live - determined based solely on her disability.
A young girl named Amelia is being denied a life-saving kidney transplant because she has Wolf-Hirschhorn Syndrome.
For me, this is the saddest story I’ve heard in a long time. It unleashed myriad emotions, many of which I was unsure how to handle. Clearly, I related their experience to ours, wondering what we would have thought, said, and done had the doctors refused to save Evan’s life when he was suffering from life-threatening seizures and apnea.
I burst into tears at the thought of what those parents are going through. I was angry – beyond angry…outraged – at the doctor’s treatment of them, at the social worker’s suggestions that they haven’t thought enough about the future. I wanted to somehow make everything better, to start a movement to find a medical team willing to help this little girl live.
I ask – no, implore – you to read this family’s story, Brick Walls. Share it. Share it on every social media outlet you can fathom. Help this thing go viral and garner the attention of people in power – celebrities, news organizations, talk shows – people who have the ability to raise a greater stink about it than we do.
Help this little girl and all disabled children get treated equitably in the medical field, in schools, and in our world.
Help this little girl live.